This episode is dedicated to updates from Diabetics Doing Things, the spillage of tea, and some serious subjects. Rob and Eritrea talk about:

• <Content Warning minutes 10:42-19:48 > Dead in the Bed syndrome

  • Source: Diabetes UK

    • The syndrome is characterized as when someone with insulin dependent diabetes has gone to bed seemingly perfectly fine and has been found dead in an undisturbed bed.

    • Accounts for 6% of t1 diabetes deaths under the age of 40

• Diabetics Doing Things updates:

  • Preparing for big evolutions

  • Collaboration with North Texas Food Bank unlocked lots of ideas

  • Practical Applications for People with Diabetes

  • Opportunities for People with Diabetes to get paid for their art, content, passions and work

• Hypo-Awareness

  • There’s a website called hypoprogram.com with a free program built to help you (and people around you) gain hypo awareness - check it out.

• Diabetic coma on edibles TikTok

• Being responsible when you’re being irresponsible

• Misdiagnosis Series and Creator Series (and a call for your suggestions)

• Sugar disclaimers for recent episodes

• Link to Glamour article about Ozempic by pod friend Zoe Witt

• Rob’s current Diabetes Stack

• Nootropics, supplements, and sleep

• Cold tubs and fitness

• Who is Rob Howe influencing and why?

We want to hear from you! Send us a DM or an email!

A special new sponsored episode with the incredible Eric Tozer (@erictozer on Instagram)!  Eric and I are both partnering with Afrezza Insulin to spread the word on how we use Afrezza in our Diabetes toolkit, and as part of the partnership, I got to sit down in the Mannkind booth with Eric and dig deep into his career as an athlete with T1D, where he finds his motivation and how he uses Afrezza.

This episode is really special. It’s rare that I get to sit down face to face with my guests and I’m super excited for you all to hear this one. 

Included in the episode is: 

• Eric’s diagnosis story

• Discussing Eric’s completion of the World Marathon Challenge in 2019

• Parallels between marathons and managing Diabetes

• How Eric handles his demanding physical and mental challenges as an athlete, businessman and father 

• How Eric has made Afrezza part of his Diabetes toolkit 

• And MORE 

Please see additional important safety information, Full Prescribing Information, including BOXED WARNING, Medication Guide and Instructions for Use on Afrezza.com/Safety.

Important Safety Information

Afrezza can cause serious side effects including sudden lung problems and low potassium and is not for patients with chronic lung disease, such as asthma or COPD, or for patients allergic to insulin. Tell your doctor if you ever smoked, have ever had kidney or liver problems, a history of lung cancer, or if you are pregnant or breastfeeding. Most common side effects are low blood sugar, cough, and sore throat. Severe low blood sugar can be fatal. Do not replace long-acting insulin with Afrezza. Afrezza is not for use to treat diabetic ketoacidosis.

Dex Geralds is back on the pod! Doing double duty as a repeat guest, and as part of both our Misdiagnosed Series and our Creator Series. In this episode, Rob and Eritrea talk to Dex about:

• Partnership with 9am Health lead to getting the antibody test and the correct diagnosis

• Misdiagnosed as T2D and the physical tolls of that misdiagnosis, like dehydration and fatigue

• Carrying your supplies as a male; making your diabetes gear look good instead of breaking fits with cargo shorts

• His content creation journey and trying not to feel like he’s abandoning his T2D community

• Finding common ground on content for people living with T1D and T2D

• Content Creators being the bridge to new treatments, information, and access to certain supplies and innovations

• Being 1% better than yesterday and the importance of routine and structure on making your life better

• It’s okay to question your diagnosis. Get a second opinion!

In this worldwide episode, Rob and Eritrea talk to Jazz Sethi, Founder of Diabesties Foundation. They talk about:

• Finding the silver lining in any situation

• Having a very helpful family dynamic

• “Dad is a universal language.”

• Diabetes stigma in India

• A game of extremes in India: access and expensive tech

• The priority of feeding your family over affording insulin

• “You focus on getting your family fed, and we will focus on getting your insulin.” The Diabesties Foundation currently supports 400 kids and wants to get to 1000.

For more information, check out Diabesties Foundation website/.

Jen Ross, T1D, Co-Founder of Swoon

This episode is part of the Diabetes Creator Series highlighting creators and entrepreneurs. Rob and Jen cover lots of topics including:

• Diagnosis at the young age of six and feeling left out

• The origin of ‘Be Mixed ‘ at Harvard Business School

• The goal of making people feel included

• Diabetes can inspire innovation

• Finding a low-cost medical plan as a startup

• Making an impact on helping others and showing up for yourself

Dr. Phyllisa Deroze is back on the pod! She talks with Rob and Eritrea about:

• Missed diagnosis, misdiagnosis, and the journey to being heard

• Processing grief through creativity

• Linguistic blaming and stigma of T2D

• Pattern of POC LADA misdiagnosed as T2D

• Honoring children and loved ones of diabetes with book, Diabetes Helpers

• Using code words for low blood sugar

• Founding Black Diabetic Info and Diagnosed But Not Defeated

• Finding blessings in the burnout

In the episode, Mary Mosier joins Diabetics Doing Things. Mary, Rob, and Eritrea discuss:

• Traveling to major Diabetes events as a person with Diabetes

• Eritrea’s 2nd time with Covid

• Rob talks about changes in his Diabetes therapy

• Updates on what’s to come for Diabetics Doing Things

• MAILBAG

  • Question 1: Mutual Aid. Have you ever given or received mutual aid for your Diabetes?

  • Question 2: How much sleep have you lost in the last week to Diabetes?

    • Rob talks about how important sleep is in general, and things he’s learned about sleep from his Whoop.

Links mentioned in this episode:

• Diabetics Doing Things Job Board

• Huberman Lab Podcast

• Whoop

In the episode, Mary Mosier joins Diabetics Doing Things. Mary, Rob, and Eritrea discuss:

• The trauma and grief associated around dX

• “Any kind of medical experience will change how you move thru the world…many of us don’t have the safe space and the support to grieve it”

• Toxic positivity

• Feeling alone w/ Diabetes or thoughts that no one will want to be with you - and learning to not take that on

• A society where we are so programmed to react one way or another

• There is no ONE way to manage diabetes

• Your story can change

• Sliding scale options to afford therapy

• It is okay to feel like everything sucks…there are people in this world who want to support you

Resources mentioned in this episode:

Here are some links & “key words” to find affordable mental health services in the United States based on your state.

• Key word “Behavioral Health Services” in the state/county of_____ . These services are free as they are state & county funded.

• If someone is using insurance contact insurance provider for insurance provider mental health website and or list of approved providers

• When paying out pocket for therapy, those with a PPO can contact insurance provider and request to use an out of network provider (OON) & check for insurance reimbursement rate if any before starting therapy.

NAMI

https://nami.org/Home

RAINN (for those who have experienced sexual assault/abuse)

https://www.rainn.org/

The Trevor Project (LGBTQIA+)

https://www.thetrevorproject.org/

Suicide Prevention

https://suicidepreventionlifeline.org/

MHA

https://mhanational.org/

Ethnic & social justice based counseling

Directories

https://therapyforblackgirls.com/

https://therapyforblackmen.org/

https://www.melaninandmentalhealth.com/

https://samhin.org/

https://muslimmentalhealth.com/directory/

https://latinxtherapy.com/

https://www.therapyforlatinx.com/

https://nqttcn.com/en/

https://www.inclusivetherapists.com/login

In the episode, friend of the pod, Cameron Hall returns to Diabetics Doing Things. Cam, Rob, and Eritrea discuss:

• Diagnosis at the age of 9

• Difference of care for patients of color

• Diabetes tech from back in the day

• Having a family of advocates

• Pretending not to have Diabetes, trying to hide it, and the price of trying to ignore it

• The mental onus of being a young black man with limitations

• Living openly at Chipotle

• Navigating new jobs, new states, new insurance, new healthcare

• Health deserts and exodus of endocrinologists

• Using client advocacy with your insurance and HR

• Burnout even when privileged

Mentioned in episode:

• getinsulin.org

• BCBS of TX Contacts

• United Healthcare Member Support and Advocacy

• Humana Help & Support

• patientadvocate.org

In the episode, Rob and Eritrea discuss:

• Recent travels

• Women doing the heavy lifting without talking about it

• Opening up about being depressed

• Not gatekeeping diabetes content from people with diabetes

• how often they go to the endocrinologist

• rants and white boy songs

• taking a pump break

Rob is joined by Dr. Mike Riddell, T1D and PHD scientist who focuses on exercise physiology and Diabetes.

In the episode, Rob and Dr. Riddell discuss:

• Technological advances in insulin

• Blood sugar and performance dips

• Living with T1D for 40 years and being one of the first users of CGM

• the future of diabetes and sports

• his most recent studies and more!

  Sign for the Type 1 Diabetes Exercise Initiative Pediatric Study.
  

Rob is joined by Dr. Mark Heyman, the Diabetes Psychologist and author of Diabetes Sucks and You Can Handle It. Order your copy today.

In the episode, Rob and Dr. Heyman discuss:

• The stress of diabetes

• the avalanche of feelings from low blood sugar

• Healthy levels of anxiety with diabetes

• Stress management

• Avoiding avoidance. Diabetes will not hold you back.

• Keeping it 100 with yourself

• Handling the reality in front of you

• Labeling your thoughts as thoughts

• Just getting 1% better each day with mindfulness

• Managing diabetes vs. managing the stress of diabetes

• Double edged sword of control

• Normalizing the struggles
  

Rob is joined by Dr. Joshua Miller, Medical Director for Diabetes Care at Stony Brook Medicine. They review Rob’s bloodwork and labs.  

Read more about Dr. Joshua Miller in the feature story, How to Talk to Your Doctor About Your Diabetes Bloodwork & Labs in the DDT Creator Zine Vol. 1 Issue 1 written by Rob Howe with visuals by Erica Howe.

In the episode, Rob and Dr. Miller:

• Review Rob’s bloodwork and labs

• What are we looking to measure - and what do we do with that information

• Diabetes is a marathon not a sprint

• Areas of complications - your chances of getting complications are between 1/100,00

• the number one preventive piece of information is an annual visit to the eye doctor -

Rob and Eritrea are joined on the podcast by Zoe Witt, writer, activist of Mutual Aid Diabetes.

Read more about Zoe Witt in the feature story, Mutual Aid Diabetes, in DDT Creator Zine Vol. 1, Issue 1 written by Christine Fallabel with visuals by Bella Petro.

In the episode, Rob and Zoe discuss:

• Rationing insulin

• Being on Medicaid

• Well-intentioned ableism

• Being way closer to rationing insulin or declaring bankruptcy than we think we are

• Mutual Aid Diabetes and how it works

  • Anyone who asks for help will be helped

  • MAD isn’t sponsored and cannot be bought

  • Where the money comes from

  • Working outside the system

• The need for volunteers

• Changing the perception of T1D

• 30% of those asking for help were uninsured

• How amazing it is to make an impact

Rob and Eritrea are joined on the podcast by Charlotte Drury, U.S. Trampoline Gymnast on the Tokyo ‘21 Olympic Team.

Read more about Charlotte in Charlotte Drury Bounces Back, the cover story for DDT Creator Zine Vol.1, Issue 1 written by Larkin Clark with images by Alfred Sarpeh.

In the episode, Rob and Charlotte discuss:

• Charlotte’s diagnosis before the Olympics

• Wanting to keep her privacy

• Discovering the Diabetes community

• Knowing there’s no wrong way to handle a diagnosis

• Fitting Diabetes into your life

• Waiting with open arms and advice

• Living life

• How awesome social media can be

• Knowing it’ll get better

Rob is joined on the podcast by Ali Dianaty, Vice President, Product Innovation & Operations at Medtronic Diabetes.

Disclosure: This episode is sponsored by Medtronic, and Rob is a paid spokesperson for Medtronic.

In the episode, Rob and Ali discuss:

1. Ali’s background and what drew him to Medtronic Diabetes

2. Moore’s law and Diabetes technology

3. Medtronic’s product suite and “meeting patients where they are.”

4. Ali teaches Rob the concept of Frugal Innovation related to Diabetes

5. You even hear Ali admit he knows what it’s like to catch pump tubing on a doorknob!

If you’d like to connect with Ali, you can find him on LinkedIn here.

The MiniMed 770G system is for type 1 ages 2 and over. Prescription required. Individual results may vary. WARNING: Do not use SmartGuard Auto Mode for people who require less than 8 units or more than 250 units of insulin/day. For details, please visit http://bit.ly/770gRisks.

The MiniMed 670G system is for type 1 ages 7 and over. Prescription Required. WARNING: May not be safe under age 7 or using less than 8 units of insulin/day. For details, see http://bit.ly/670gRisks. Refers to Auto Mode. Some user interaction required. Individual results may vary.

We’re back with all new exclusive interviews, our guest this week is Dr. Kelly Wild!

On this episode, Rob and Kelly chat about:

• Rob talks about his connection to Kelly via the Olympic movement and USA Weightlifting (where Rob started his marketing career)

• Growing up in an environment with Diabetes normalized

• Evolving as an athlete through the years in various sports

• Playing Hockey, which Rob also did, and becoming a Division 1 Athlete

• Competing in the CrossFit Games with Diabetes

• Kelly’s Day-Of Crossfit Games Routine and blood sugar management plan

• The athleticism of Olympic Weightlifting

• Kelly’s journey to becoming a Doctor of Physical Therapy

• Rob and Kelly nerd out over mobility, adaptability, functional strength, and its relationship to Diabetes.

• More discussion about athletics and sport related to Diabetes and the lessons it teaches you

• What’s next for Kelly with Team USA and what its like to represent the USA in international competition

• What goes through Kelly’s mind on competition day (hint: she gets nervous too)

• Kelly’s Diabetes management leading up to competition

We’re back with a brand new episode with DDT’s first mailbag!

On this episode, Rob and Eritrea chat about:

• Eritrea’s 20th Diaversary

• Validation of firing your doctor

• Relationships with your endocrinologist

• Conversations don’t hurt

• DDT Mailbag with listener questions & answers

  Check out this week’s episode on YouTube!

We’re back with all new exclusive interviews, our guest this week is !

On this episode, Rob, Eritrea and Kylene chat about:

• Kylene’s Diagnosis and Misdiagnosis

• The origin story of Black Diabetic Girl

• Kylene’s viral tweet about Diabetes influencers

• What it’s like for you and your friends to see you in a Dexcom ad

• How Kylene and Eritrea know each other

• Round table discussion from NDAM 2021

• What’s next for Black Diabetic Girl

We’re back with all new exclusive interviews, our guest this week is Christina Martin!

On this episode, Rob, Eritrea and Christina chat about:

• Dreaming Big

• Joining a Ninja Gym

• Making the Audition Tape for ANW (watch it here: https://youtu.be/_QwEoLADr8)

• Recording American Ninja Warrior

• Showing her Insulin Pump

• Christina taking us through how she used to feel embarrassed about Diabetes

• The importance of finding your Why"