Episode 200 - Rob & Eritrea are back! DDT Updates! Plus your mailbag responses.

Episode 200 - Rob & Eritrea are back! DDT Updates! Plus your mailbag responses.

In the episode, Mary Mosier joins Diabetics Doing Things. Mary, Rob, and Eritrea discuss:

  • Traveling to major Diabetes events as a person with Diabetes

  • Eritrea’s 2nd time with Covid

  • Rob talks about changes in his Diabetes therapy

  • Updates on what’s to come for Diabetics Doing Things

  • MAILBAG

    • Question 1: Mutual Aid. Have you ever given or received mutual aid for your Diabetes?

    • Question 2: How much sleep have you lost in the last week to Diabetes?

      • Rob talks about how important sleep is in general, and things he’s learned about sleep from his Whoop.

Links mentioned in this episode:

Episode 199 - Mary Mosier, T1D, Licensed Marriage & Family Therapist

Episode 199 - Mary Mosier, T1D, Licensed Marriage & Family Therapist

In the episode, Mary Mosier joins Diabetics Doing Things. Mary, Rob, and Eritrea discuss:

  • The trauma and grief associated around dX

  • “Any kind of medical experience will change how you move thru the world…many of us don’t have the safe space and the support to grieve it”

  • Toxic positivity

  • Feeling alone w/ Diabetes or thoughts that no one will want to be with you - and learning to not take that on

  • A society where we are so programmed to react one way or another

  • There is no ONE way to manage diabetes

  • Your story can change

  • Sliding scale options to afford therapy

  • It is okay to feel like everything sucks…there are people in this world who want to support you

Resources mentioned in this episode:

Here are some links & “key words” to find affordable mental health services in the United States based on your state.

  • Key word “Behavioral Health Services” in the state/county of_____ . These services are free as they are state & county funded.

  • If someone is using insurance contact insurance provider for insurance provider mental health website and or list of approved providers

  • When paying out pocket for therapy, those with a PPO can contact insurance provider and request to use an out of network provider (OON) & check for insurance reimbursement rate if any before starting therapy.

NAMI

https://nami.org/Home

RAINN (for those who have experienced sexual assault/abuse)

https://www.rainn.org/

The Trevor Project (LGBTQIA+)

https://www.thetrevorproject.org/

Suicide Prevention

https://suicidepreventionlifeline.org/

MHA

https://mhanational.org/

Ethnic & social justice based counseling

Directories

https://therapyforblackgirls.com/

https://therapyforblackmen.org/

https://www.melaninandmentalhealth.com/

https://samhin.org/

https://muslimmentalhealth.com/directory/

https://latinxtherapy.com/

https://www.therapyforlatinx.com/

https://nqttcn.com/en/

https://www.inclusivetherapists.com/login

Episode 198 - Cameron Hall, T1D Advocate

Episode 198 - Cameron Hall, T1D Advocate

In the episode, friend of the pod, Cameron Hall returns to Diabetics Doing Things. Cam, Rob, and Eritrea discuss:

  • Diagnosis at the age of 9

  • Difference of care for patients of color

  • Diabetes tech from back in the day

  • Having a family of advocates

  • Pretending not to have Diabetes, trying to hide it, and the price of trying to ignore it

  • The mental onus of being a young black man with limitations

  • Living openly at Chipotle

  • Navigating new jobs, new states, new insurance, new healthcare

  • Health deserts and exodus of endocrinologists

  • Using client advocacy with your insurance and HR

  • Burnout even when privileged

Mentioned in episode:

Episode 196 - Dr. Mike Riddell, T1D, Scientist, Physiologist, Author

Episode 196 - Dr. Mike Riddell, T1D, Scientist, Physiologist, Author

Rob is joined by Dr. Mike Riddell, T1D and PHD scientist who focuses on exercise physiology and Diabetes.

In the episode, Rob and Dr. Riddell discuss:

  • Technological advances in insulin

  • Blood sugar and performance dips

  • Living with T1D for 40 years and being one of the first users of CGM

  • the future of diabetes and sports

  • his most recent studies and more!

    Sign for the Type 1 Diabetes Exercise Initiative Pediatric Study.

Episode 195 - Dr. Mark Heyman, Author of "Diabetes Sucks and You Can Handle It"

Episode 195 - Dr. Mark Heyman, Author of "Diabetes Sucks and You Can Handle It"

Rob is joined by Dr. Mark Heyman, the Diabetes Psychologist and author of Diabetes Sucks and You Can Handle It. Order your copy today.

In the episode, Rob and Dr. Heyman discuss:

  • The stress of diabetes

  • the avalanche of feelings from low blood sugar

  • Healthy levels of anxiety with diabetes

  • Stress management

  • Avoiding avoidance. Diabetes will not hold you back.

  • Keeping it 100 with yourself

  • Handling the reality in front of you

  • Labeling your thoughts as thoughts

  • Just getting 1% better each day with mindfulness

  • Managing diabetes vs. managing the stress of diabetes

  • Double edged sword of control

  • Normalizing the struggles

Episode 194 - Dr. Joshua Miller, Medical Director for Diabetes Care

Episode 194 - Dr. Joshua Miller, Medical Director for Diabetes Care

Rob is joined by Dr. Joshua Miller, Medical Director for Diabetes Care at Stony Brook Medicine. They review Rob’s bloodwork and labs.  

Read more about Dr. Joshua Miller in the feature story, How to Talk to Your Doctor About Your Diabetes Bloodwork & Labs in the DDT Creator Zine Vol. 1 Issue 1 written by Rob Howe with visuals by Erica Howe.

In the episode, Rob and Dr. Miller:

  • Review Rob’s bloodwork and labs

  • What are we looking to measure - and what do we do with that information

  • Diabetes is a marathon not a sprint

  • Areas of complications - your chances of getting complications are between 1/100,00

  • the number one preventive piece of information is an annual visit to the eye doctor -

Episode 193 - Zoe Witt, Writer, Activist, Mutual Aid Diabetes

Episode 193 - Zoe Witt, Writer, Activist, Mutual Aid Diabetes

Rob and Eritrea are joined on the podcast by Zoe Witt, writer, activist of Mutual Aid Diabetes.

 

Read more about Zoe Witt in the feature story, Mutual Aid Diabetes, in DDT Creator Zine Vol. 1, Issue 1 written by Christine Fallabel with visuals by Bella Petro.

In the episode, Rob and Zoe discuss:

  • Rationing insulin

  • Being on Medicaid

  • Well-intentioned ableism

  • Being way closer to rationing insulin or declaring bankruptcy than we think we are

  • Mutual Aid Diabetes and how it works

    • Anyone who asks for help will be helped

    • MAD isn’t sponsored and cannot be bought

    • Where the money comes from

    • Working outside the system

  • The need for volunteers

  • Changing the perception of T1D

  • 30% of those asking for help were uninsured

  • How amazing it is to make an impact

Episode 192 - Charlotte Drury, U.S. Trampoline Gymnast, Tokyo '20 Olympic Team

Episode 192 - Charlotte Drury, U.S. Trampoline Gymnast, Tokyo '20 Olympic Team

Rob and Eritrea are joined on the podcast by Charlotte Drury, U.S. Trampoline Gymnast on the Tokyo ‘21 Olympic Team.

Read more about Charlotte in Charlotte Drury Bounces Back, the cover story for DDT Creator Zine Vol.1, Issue 1 written by Larkin Clark with images by Alfred Sarpeh.

 

In the episode, Rob and Charlotte discuss:

  • Charlotte’s diagnosis before the Olympics

  • Wanting to keep her privacy

  • Discovering the Diabetes community

  • Knowing there’s no wrong way to handle a diagnosis

  • Fitting Diabetes into your life

  • Waiting with open arms and advice

  • Living life

  • How awesome social media can be

  • Knowing it’ll get better

Episode 191 - Ali Dianaty, VP Product Innovation, Medtronic Diabetes

Episode 191 - Ali Dianaty, VP Product Innovation, Medtronic Diabetes

Rob is joined on the podcast by Ali Dianaty, Vice President, Product Innovation & Operations at Medtronic Diabetes.

 

Disclosure: This episode is sponsored by Medtronic, and Rob is a paid spokesperson for Medtronic.

 

In the episode, Rob and Ali discuss:

  1. Ali’s background and what drew him to Medtronic Diabetes

  2. Moore’s law and Diabetes technology

  3. Medtronic’s product suite and “meeting patients where they are.”

  4. Ali teaches Rob the concept of Frugal Innovation related to Diabetes

  5. You even hear Ali admit he knows what it’s like to catch pump tubing on a doorknob!

 

If you’d like to connect with Ali, you can find him on LinkedIn here.

 

The MiniMed 770G system is for type 1 ages 2 and over. Prescription required. Individual results may vary. WARNING: Do not use SmartGuard Auto Mode for people who require less than 8 units or more than 250 units of insulin/day. For details, please visit http://bit.ly/770gRisks.

 

The MiniMed 670G system is for type 1 ages 7 and over. Prescription Required. WARNING: May not be safe under age 7 or using less than 8 units of insulin/day. For details, see http://bit.ly/670gRisks. Refers to Auto Mode. Some user interaction required. Individual results may vary.

Episode 190 - Kelly Wild USA Weightlifting National Champion

Episode 190 - Kelly Wild USA Weightlifting National Champion

We’re back with all new exclusive interviews, our guest this week is Dr. Kelly Wild!

On this episode, Rob and Kelly chat about:

  • Rob talks about his connection to Kelly via the Olympic movement and USA Weightlifting (where Rob started his marketing career)

  • Growing up in an environment with Diabetes normalized

  • Evolving as an athlete through the years in various sports

  • Playing Hockey, which Rob also did, and becoming a Division 1 Athlete

  • Competing in the CrossFit Games with Diabetes

  • Kelly’s Day-Of Crossfit Games Routine and blood sugar management plan

  • The athleticism of Olympic Weightlifting

  • Kelly’s journey to becoming a Doctor of Physical Therapy

  • Rob and Kelly nerd out over mobility, adaptability, functional strength, and its relationship to Diabetes.

  • More discussion about athletics and sport related to Diabetes and the lessons it teaches you

  • What’s next for Kelly with Team USA and what its like to represent the USA in international competition

  • What goes through Kelly’s mind on competition day (hint: she gets nervous too)

  • Kelly’s Diabetes management leading up to competition

Episode 188 - Kylene Dyana Redmond - Black Diabetic Girl

Episode 188 - Kylene Dyana Redmond - Black Diabetic Girl

We’re back with all new exclusive interviews, our guest this week is !

On this episode, Rob, Eritrea and Kylene chat about:

  • Kylene’s Diagnosis and Misdiagnosis

  • The origin story of Black Diabetic Girl

  • Kylene’s viral tweet about Diabetes influencers

  • What it’s like for you and your friends to see you in a Dexcom ad

  • How Kylene and Eritrea know each other

  • Round table discussion from NDAM 2021

  • What’s next for Black Diabetic Girl

Episode 187 - Christina Martin - First Woman with T1D on American Ninja Warrior (Copy)

Episode 187 - Christina Martin - First Woman with T1D on American Ninja Warrior (Copy)

We’re back with all new exclusive interviews, our guest this week is Christina Martin!

On this episode, Rob, Eritrea and Christina chat about:

  • Dreaming Big

  • Joining a Ninja Gym

  • Making the Audition Tape for ANW (watch it here: https://youtu.be/_QwEoLADr8)

  • Recording American Ninja Warrior

  • Showing her Insulin Pump

  • Christina taking us through how she used to feel embarrassed about Diabetes

  • The importance of finding your Why"

Episode 186 - First Podcast of 2022 (Rob's 17th Diaversary)

Episode 186 - First Podcast of 2022 (Rob's 17th Diaversary)

We’re back for 2022, in a new video format!

On this episode, Rob, Eritrea chat about:

  • Rob’s thoughts around his 17th Diaversary

  • What’s new with Diabetics Doing Things in 2022

  • The importance of Sleep

  • People only sharing things they agree with

  • People with Diabetes deserving respect and dignity

  • Advice for a young teen with Diabetes adjusting to everyday life

  • Dealing with loss of people close to you

For the video version of this episode check us out on YouTube: https://youtu.be/iQvQRq2NJiE

Episode 185 - TV Meteorologist Kelly Reardon

This week’s guest is Kelly Reardon, T1D and TV Meteorologist (@kellyrweather on Instagram).

On this episode, Rob, Eritrea and Kelly discuss:

  • Kelly’s Diganosis as a college Freshman away from home

  • Challenges with adjusting to Diabetes as an adult

  • Eritrea talks about “The Three Polys” in Diabetes diagnosis

  • Glucagon discussion

  • Conversation about Diabetes Technology and Smart Guard Auto Mode from Medtronic

  • Incredible conversation about Diabetes and Mental Health

  • A spicy segment called “Kelly reads the DMs” about being a woman on the internet

Episode 184 - Think Like A Pancreas Book Club with Gary Scheiner

This week’s guest is Gary Scheiner, MS, CDCES and founder of Integrated Diabetes Services (@Integrated_diabetes_services on instagram).

For National Diabetes Awareness Month 2021, we wanted to read what many say is the best book on Diabetes Management, “Think Like a Pancreas” and bring Gary on the show to ask him questions from our trip through the book. Gary also gives Rob great advice to stay retired from basketball in the first minute of the show.

If you want to purchase Think Like A Pancreas, you can get it on Amazon or order a signed copy at IntegratedDiabetesServices.com

On this special episode, Rob, Eritrea and Gary discuss:

  • When did it become clear that there was a huge gap to fill in broader diabetes knowledge from someone who actually lived with the disease?

  • What’s changed between the versions of the book

  • The 3 keys to diabetes management

  • Hybrid Closed Loop Systems

  • Long term benefits of bg control

  • Discussion about Diabetes Complications

  • How to talk to your doctor/care team

  • bonus: Gary talks about this song on YouTube called “think like a pancreas”

Episode 183 - Ariana Frayer - Cup of OJ Creative - T1D

This week’s guest is Ariana Frayer (@arianafrayer on Instagram)

Special bonus intro, as Ariana joins Eritrea and Rob to discuss the controversy around the Diabetes App and her experience working with them and how she handled that relationship after the Diabetes community revealed their business model and lack of transparency.

After the intro, Rob, Eritrea and Ariana discuss:

  • Diagnosis story

  • Cup of OJ Creative & Turning Diabetes energy into creativity

  • Behind the scenes story of Ariana’s engagement trip, where she was working on a Diabetics Doing Things Project

  • Blogging & Living Through a Diabetes Lens

  • Ariana’s collab with Skin Grip

  • The art of a charcuterie board

  • Most rewarding questions/interactions from the Diabetes community

  • BONUS: Spilling the tea on the Diabetes app

Episode 182 - Dan Newman - aka T1D Dan, Diabetes Podcaster & Advocate (Copy)

This week’s guest is Daniel Newman (@t1d_dan on Instagram)

Rob is on the intro solo to deliver a Content Warning: this episode contains discussion about mental health and depression. Listener discretion is advised.

After the intro, Rob, Eritrea and Dan discuss:

  • Diagnosis story

  • Dan’s podcast Talking Type 1

  • Dan’s story of sharing his life with Diabetes Complications

  • Receiving a Kidney Transplant

  • The Importance of Community when living with a Chronic Illness

  • BONUS: Rob asks Dan about plagiarism in the Diabetes community when his Olympics tweet was plagiarized

SPONSORED! This episode is sponsored by Type Zero Health, a T1D owned business who make exceptional clean exercise products that don’t spike your blood sugar. Type Zero is the official exercise partner of Diabetics Doing Things and you can save 20% on your order from TypeZeroHealth.com by using ROBHOWE at checkout.