Episode 369 - Finding Community, Identity & Building The Chronically Illest with Rachael Stickles

Episode 369 - Finding Community, Identity & Building The Chronically Illest with Rachael Stickles
Diabetics Doing Things Podcast

Rachael Stickles started The Chronically Illest because, as Rob puts it, diabetes had absolutely no swag. People with diabetes get beige meter cases and T-shirts that don’t inspire daily wear. Rachael wanted to change that. So she and her partner turned their studio apartment into a workshop and taught themselves how to make stickers, screen printing, and web design, all while working full-time jobs. Her partner asked "So what have you done on the business this week?" every single Sunday until it became a reality. Now, this year it's Rachael's full-time work.

Getting there wasn't the glossy quit-your-job story. Diagnosed with type 1 at twelve, Rachael spent her teens and college years sneaking food, skipping doses, and taking just enough insulin to get by. She thought she was the only one, until she posted about it and hundreds of people replied: me too. As an adult she always held at least one job just for the insurance, and in this episode she's honest about what finally let her leave her corporate role.

Rob and Rachael also push back on the "you can do anything with diabetes" message. You can, Rachael says, but often with extra steps, and being honest about those steps matters. They get into finding community when you don't see yourself in the room. Rachael started posting online because she wanted to find people that looked like her and had similar experiences. Rachael is half-asian, half-white, and queer. She wanted to find the other T1D’s that were bolusing for rice! In this episode, we are redefining success away from A1Cs and follower counts, and explaining why a meetup with two people is still a meetup.

If you've ever felt like the diabetes community was a room you couldn't quite fit into, this one's for you.

Chapters

00:00 Rob introduces Rachael and The Chronically Illest

02:01 Twenty years with T1D, diagnosed at twelve

04:35 Skipped doses, DKA, and a secret shame

07:12 Why the teenage years hit hardest

09:40 Finding community online before the DOC existed

12:55 Why one connection is worth it

17:25 The Chronically Illest starts with zero swag

19:44 A studio apartment becomes a sticker workshop

21:44 Learning to say no as an entrepreneur

22:28 The myth of "diabetes can't stop you"

23:31 Insurance, partnership, and quitting the nine-to-five

31:34 How to keep your heart open in hell

34:46 Redefining success: A1C, followers, and money

39:15 Giving back through copay giveaways and picnics

42:08 Advice for anyone who doesn't fit the mold

Resources:
The Chronically Illest shop

Instagram: @thechronicallyillest

Instagram: @thechronicallyrachael

Episode 369 - Episode 369 - Finding Community, Identity & Building The Chronically Illest with Rachael Stickles