Janet Marin is an example of someone embracing themselves fully and living their best life. If you follow her on Instagram @jay_marinnn, you know that’s true. She is a T1D that also lives with gastroparesis, vitiligo, neuropathy, fibromyalgia, and is open about all of it along with her mental health journey. Rob and Eritrea talk to her about all of that and more:
T1D diagnosis at young age of six
Sick days and non-sick days when you live with chronic illness
Being bilingual and the translator between your doctors and your parents
Health equity and getting translators in the room to serve education in the language needed
Autoimmune responses like vitiligo
Gastroparesis diagnosis in 2017 and the lack of information around it
Gastroparesis flare-ups and the effects of malnourishment on her body
The support of the chronic illness online community especially around having a feeding tube
Advice for those newly diagnosed with a rare disease or a rare disease alongside T1D
The isolation that you can feel in these diagnoses or complications
Eradicating shame and guilt-causing language especially from healthcare professionals
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