Friday T1D Feels - Volume 1 - Issue 2

This message originally appeared as a part of Rob's Friday T1D Feels email newsletter. 

Friday T1D Feels. Volume 1.2

Happy Friday, 

Thank you to everyone who reached out last week after my note, I'm grateful to have such an awesome community of friends, T1D and muggles alike ;) 

I've been thinking a lot about how special the T1D community is and how fortunate we all are to not have to fight this ongoing battle against T1D alone. For me personally, I hit a rough spot with my insulin supply last week, where my backup insulin source (during my brief stint without insurance) fell through. I made an Instagram story showing an inside look at the "startup life" of a T1D to show that there are challenges that often go unseen in the life of a T1D. 

Fortunately for me, I've gotten to know so many of you over the last year and a half, that two strangers reached out cold and offered to give me some of their extra insulin, a good friend pointed me to the Lilly Insulin assistance program and even Derek Theler asked if I needed insulin after our Diabetics Doing Things interview. 

I was blown away by the generosity of complete strangers, and it really reinforced that the Diabetics Doing Things mission is still intact. I set an intention at the start that if DDT helped just one person, it would all be worth it. I just didn't know that I would be that person one day. So thanks to all of you, I now have enough insulin to make it through my insurance onboarding process (cue sigh of relief). 

But I wouldn't have had those options if I hadn't gotten involved. That's important to me, because I know there are a lot of T1Ds out there who don't want to call attention to their disesase or get special treatment. I used to be one of them. My quality of life (and A1C) has significantly improved since I started getting involved and telling the stories of other T1D friends. So what are you waiting on? If you are afraid, or come up with reasons why not to get involved, feel free to email me. I'd love to talk about them with you. 

In the meantime, there's a lot of great stuff happening in the next week in the world of Diabetics Doing Things:

  • JDRF Dallas' Brew for the Cure event is Tomorrow from 2-5p. Yours truly will be speaking and volunteering so if you're in Dallas come say hi! 
  • The next 5 episodes of Diabetics Doing Things are going to be EPIC! (Dave Mina, Dana Howe, Derek Theler, Mary Adams & Libby Russell)

Hopefully I can get all those done this weekend! 

What's been on your mind this week? I'm dying to know because I'm putting together a program on T1D and Mindfulness. What are some everyday T1D issues that you could be more mindful about? 

Loving this new email format, grateful to have such a great group of people to chat with. 

Until next week!
Rob

Friday T1D Feels - Volume 1 - Issue 1

This message originally appeared as a part of Rob's Friday T1D Feels email newsletter. 

Friday T1D Feels. Volume 1.1 

Happy Friday, 

For most of you, it's been a while since I've reached out via email. I wanted to create a new format to communicate with you all that wasn't so marketing heavy. I plan to do it weekly, and invite you to reply back with your thoughts on the T1D community as well. If you could do without another email every week, I totally understand and won't take it personally if you unsubscribe. But I really hope you enjoy it. Thank you for your support of Diabetics Doing Things. 

Friday T1D Feels - Volume 1.1

What a few weeks it's been in the T1D online community. My heart is heavy over the loss of Tommy Green, a T1D from the UK who passed away in his sleep in early May. Two year old Colton Porter has been denied an Omnipod pump by United Healthcare, despite his parents following the process to the letter and a doctor's recommendation that the Omnipod (a pump without tubing) is the safest solution for his treatment (because of his T1D and Autism presents challenges for pumps with tubing). 

Yet, there are so many things to be thankful for: 

Hundreds of T1Ds have posted #Dab4Tommy on social media, to remember Tommy and spread awareness of the dangers T1Ds face on a daily basis.

Beyond Type 1 CEO Sarah Lucas wrote a letter to the CEO of United Healthcare, calling for UHC to #CoverColton which resulted in an outpouring of rage, well wishes and a plea for action by United Healthcare from the T1D community. 

It's this show of support in a time of darkness and the drawing of a line in the face of injustice that makes me so grateful to be involved in the T1D family. There are so many negative headlines of the dangers of social media, yet without the communities built on Facebook, Instagram & Twitter, living with T1D would so much more difficult.

Nearly all the guests I've interviewed on Diabetics Doing Things mention how discovering the T1D community through social media impacted them in a positive way. For me personally, it made me focus on my health and lower my A1C from 7.2 to 6.1 in less than 1 year. That doesn't even cover the thousands of fellow T1Ds I've met along the way and how they all inspire me to be even better. 

So I'll leave you with a quote (because I love quotes) and a call-to-action: 

"Tough times never last, tough people do." - Robert Schuller

Get involved. Start a race team. Encourage others via social media. Become a pen pal with Beyond Type 1. Tell your story on my podcast. Text a T1D friend and tell them how great they are. 

We're in this together. Thick and thin. Cure or no cure. 

So that's what and how I'm feeling this Friday. Have a great weekend, I'm grateful for each and every one of you. 

What's been on your mind as a T1D lately? Reply to me, let's talk about it. 

Rob

Diabetics Doing Things Podcast On iTunes

You will now be able to find our podcast in the Podcasts app, as well as other third party apps that integrate into iTunes podcasts. Thank you all for your patience during this process, and we can't wait to keep adding more interviews to our Podcast library. 

If you or someone you know would like to appear on Diabetics Doing Things, please email us at rob@diabeticsdoingthings.com and get in touch! Don't forget to subscribe to receive weekly updates as well. 

Diabetics Doing Boxing | Luke Byrne

Diabetics Doing Boxing | Luke Byrne

Luke “Sugar Free” Byrne is a 19-year old Boxer from Mumford, Ireland. He was diagnosed with Diabetes on January 6, 2010, so at the time of publishing, is celebrating his 6th anniversary since diagnosis. In our Diabetics Doing Things Podcast, we talked about his diagnosis, challenges of getting doctor’s approval to continue to box, and words of encouragement to other Diabetics. 

Diabetics Doing Things Podcast to Launch January 5th 2016

The Diabetics Doing Things Podcast is set to launch January 5th 2016 on DiabeticsDoingThings.com with a corresponding blog launching the same day.

 Diabetics Doing Things is a platform for Diabetics share stories about the amazing things they are doing, in spite of being Diabetic.  "I'm very grateful for the outpouring of support for Diabetics Doing Things so far. We've been able to have so many meaningful conversations and gained so much momentum from Diabetics everywhere, and especially on Instagram." said Diabetics Doing Things founder, Rob Howe, a Type-1 Diabetic since 2005. "It's our goal to create an inclusive community of Type-1 Diabetics across the world and give them a platform to tell their stories. I'm very excited for what the future holds." 

The first episode of the Podcast features undefeated Irish amateur boxer Luke Byrne, who discusses the challenges associated with becoming certified to box with Diabetes. 

If you or someone you know is a Type-1 Diabetic and is interested in joining the Diabetics Doing Things podcast, or participating in a guest blog, please email rob@diabeticsdoingthings.com. Be sure to check out the Diabetics Doing Things Podcast and don't forget to subscribe to the Diabetics Doing Things newsletter below!